Since you asked… and please don’t take the following as a “ woe is me” story - everyone has their problems. (and doubtless some here have health problems worse than what I’m dealing with.). But in the spirit of sharing experiences that might be of interest to anybody else on the topic of Tinnitus…
Sorry for your loss, any "cures" you've pursued?
Yes, and no.
I’ve dealt with the waxing and waning of tinnitus generally quite well over the years. It could be astonishingly loud and yet I just ignored it I would habituate again. Pretty much like I think anyone else here who has tinnitus.
As for treatments, there is one that I want to pursue when I can. I had an event that caused what is called “ catastrophic hyperacusis” in 2018 where it was difficult to even talk because it hurt my ears. I underwent a therapy that is similar to TRT (tinnitus retraining therapy), which involved wearing small hearing aid like devices that pumped carefully modulated white noise into my ears to essentially retrain the nervous system. It usually takes around 18 months to two years, it took me a little longer, but in the end, my ears were more robust than they had been for decades, and I was happily listening to music and watching movies comfortably louder volumes than I had before. However, that said my threshold for loud sound or music is still below the average person, before I suffer consequences.
Unfortunately around last February, I was starting to crank my stereo system really loud (for me). And I spent one night with it really cranked listening for maybe six hours, and ignoring the growing ringing in my ear because I thought “ it will just go away like before.” But it didn’t. It got crazy loud. And sleepless nights ensued. It’s really nuts, even trying to listen to music quietly on my iPhone speakers leaves my tinnitus screaming at this point.
I believe that one big reason I haven’t been able to rehabituate to the ear ringing is due to my having Long Covid, which has been getting progressively worse over the past three years. Tinnitus is highly associated with Long Covid to begin with (if you want to avoid tinnitus, try and avoid getting Covid!). LC highly disrupts the nervous system, putting you in a sort of permanent fight or flight mode, and so it’s hard to calm the system stress that can be contributing to tinnitus.
So back to the treatment… I intend at some point to take up the TRT again which had helped with my hyperacusis, but this time focussed on my Tinnitus. Unfortunately the progression of my LC has debilitated me physically and I cannot make it to any of the necessary appointments. (that’s why my posts are being voice dictated on my phone with all the typos and errors as I can’t sit at my desktop computer). So I have to deal with recovering somehow from LC first, putting the tinnitus treatment on the back burner until then. Based on the experience of other people who got better from LC, tinnitus issues tend to improve along with that.
I’ve also consulted recently a couple times with one of the USA’s leading experts on Tinnitus. His view is that it’s really habituation or bust in terms of dealing with Tinnitus. But I think some people can use a little help with habituation, which is why certain therapies can be helpful. (This doctor tends to concentrate more on CBT for tinnitus).
On the bright side, my hearing for my age remains really good, probably because I started protecting my hearing starting in the 90s with earplugs at loud events.
Cheers