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Lenire Tinnitus Treatment

kemmler3D said:
I am hoping the cilia / neuron regenerative therapies come to fruition someday, but if we can't get high frequencies back, at least we could stop these annoying tones...
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I am hoping as well that this happens sooner than later. It is amazing to me that we haven't solved the loss of inner hair cells.
 
Big WDF (Wife Disgusting Factor) over here:facepalm:
TimF said:
My nose hairs sure keep growing. I know I shouldn't share that kind of information.
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I got tinnitus from shooting howitzers (large cannons) in the Viet Nam war, into which I was drafted. Poor little eardrums went way over their excursion limits, and the little muscle in them that damps the membrane fatigued in no time.
 
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I don't think the VA is going to cover this;):D...but it's good to know that someone has come up with a possible treatment. Thanks Amir.
 
kemmler3D said:
Just in case this helps anyone:

If I lie down in bed with earplugs (I sleep with them, so this is every day) and concentrate on my tinnitus tones in a certain way, I can make them go away for a bit. The "technique" if you want to call it that, is to imagine I've applied a notch filter to the tones, and I'm gradually lowering the gain.

It probably sounds silly and on-the-nose for an audio forum... but I think this works for me because I've used PEQ so damn much in my life. I started playing with FL Studio almost 20 years ago, and so this is a pretty well-ingrained idea for me. YMMV.

The core of it is for my conscious mind to remind ... whatever part of my brain is responsible for tinnitus that the tones aren't real, and that I would like them to go away.

They always come back after a while, but if I am feeling bothered by it, it gets me a break for an hour or so.
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I've successfully used a similar technique on occasional tinnitus in my right ear. I just concentrate on it and think about it's volume going down. After 10 seconds or so, it does. Unfortunately, this doesn't work for my left ear where the noise is constant.

Does insurance cover this treatment? I'm going to retire at the end of the year, so, if so, I might want to get it done quick!
 
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kemmler3D said:
A company out of MA was supposed to get the cells to grow back, but apparently it failed in trials, it's called FX-322. I guess there's another one going into trials in the UK, Rincell. https://www.labiotech.eu/in-depth/stem-cell-therapy-hearing-disorders/
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NB that several therapies aim to regenerate auditory neurons, which are not hair cells, they are the mediators between hair cells and brain, though one of the two Rincell trials is to also regenerate hair cells.
 
krabapple said:
NB that several therapies aim to regenerate auditory neurons, which are not hair cells, they are the mediators between hair cells and brain, though one of the two Rincell trials is to also regenerate hair cells.
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Fingers crossed that something comes of it. I'm looking forward to still being able to hear >10khz in my 60s, but at this rate there's no guarantee. City living is loud, man...
 
I had an MRI scan when I developed Tinnitus in 2007. It was negative and as the doctor closed my case he said he would give me a warning: "there are many private firms promising cure or alleviation for Tinnitus, save your money, none of them work"!
This was 2007 so things may have moved on.
 
Wow, I hadn't heard of this therapy!

As someone with pretty bad T, I'll keep my eye on it and follow this thread. Doesn't look like it's available where I live unfortunately.

I did a treatment for hyperacusis which seemed to work pretty well (though took about 2 years of wearing noise devices in my ears).
 
My ping to the admin at the doctor office worked and my zoom appointment is next week (he is in Alaska!). Have to pay $200 for the zoom session. I think my deductible for the audiologist test was $240. So total is $440 so far.
 
An update. Just finished my remote consultation with the Tinnitus doctor. She said my case is marginal based on the questionnaire I filled out. The better candidates are those whose life is impacted by Tinnitus. Mine is mostly there when I am thinking about it and once in a while, due to other factors.

Process is 12 weeks where you have to wear a headphone that plays tones, music, noises, etc. while you get some tongue electrical stimulation. You have to wear the device ideally 1 hour continuously but two half-hour periods are also OK. They don't want any "screen time." I asked why and she said they don't want people to get bad news, etc. that would pull them out of the therapy. I explained what I do when testing audio gear and she said that should be OK.

The device they send you is yours to keep. It needs to be setup and calibrated for your hearing and instruction given to you on how to maintain it (she said it is mostly using alcohol wipes to clean the tongue stimulator). You go to a local clinic for that. The unit is portable and keeps the charge for a week.

Here is the bad news: on top of what I have already paid (about $500), the device which includes three consultations costs $4,300!!!

I figured I go ahead with the program despite the high cost. So will see what happens.
 
amirm said:
An update. Just finished my remote consultation with the Tinnitus doctor. She said my case is marginal based on the questionnaire I filled out. The better candidates are those whose life is impacted by Tinnitus. Mine is mostly there when I am thinking about it and once in a while, due to other factors.

Process is 12 weeks where you have to wear a headphone that plays tones, music, noises, etc. while you get some tongue electrical stimulation. You have to wear the device ideally 1 hour continuously but two half-hour periods are also OK. They don't want any "screen time." I asked why and she said they don't want people to get bad news, etc. that would pull them out of the therapy. I explained what I do when testing audio gear and she said that should be OK.

The device they send you is yours to keep. It needs to be setup and calibrated for your hearing and instruction given to you on how to maintain it (she said it is mostly using alcohol wipes to clean the tongue stimulator). You go to a local clinic for that. The unit is portable and keeps the charge for a week.

Here is the bad news: on top of what I have already paid (about $500), the device which includes three consultations costs $4,300!!!

I figured I go ahead with the program despite the high cost. So will see what happens.
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Wow!

Well, that’s therapy for ya. My Hyperacusis treatment cost around $3,000.

Good to see you are going through with it, for those of us looking for reliable user insight on the treatment.
 
I'm skeptical right now. In any case, like Amir I'm sure my case is "marginal". Like our chief I really only hear the tinnitus when I'm think about or sometimes when listening to music :(
 
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