Lenire Tinnitus Treatment

[dped90]

If you're young enough you may be around for a cure for the most common causes of (partial) hearing loss-of which tinnitus is usually the result of.

Stanford Initiative to Cure Hearing Loss

Our mission is to invent ways to repair or prevent damage to the hearing and balance systems. Why? Because 1.5 billion people worldwide are affected by hearing loss. Related ear disorders, such as vertigo and tinnitus, affect countless others and there is still no cure. The Stanford Initiative...

med.stanford.edu

Our Clinical Research - Rinri Therapeutics

The First in Human trial of Rincell-1Hearing aids and cochlear implants are globally recommended treatment options for sensorineural hearing loss, but they cannot restore normal hearing and do not treat the neural component of sensorineural hearing loss. Hearing aids work by making sounds...

www.rinri-therapeutics.com

 

[amirm]

Hopefully it is not too late by the time some of us get to that point....

 

[Timcognito]

Hopefully it is not too late by the time some of us get to that point....

Yes mine is on and off but the NREM sleep thing seems to help. I wake up at night and its gone, I mean dead silent.

 

[MattHooper]

Yes mine is on and off but the NREM sleep thing seems to help. I wake up at night and its gone, I mean dead silent.

Wait…what is this?

NREM (non-rapid eye movement)

What are you doing exactly and how is that helping?

 

[Timcognito]

I posted a paper on a proposed scientific study above, as some are linking tinnitus to an active brain disorder related to sleeping, especially deep sleep. Best read it as I'll miss quote it. Another poser has been taking suppliants to help with his ability to sleep that is helping him. I too started to avoid screens late, all caffeine strictly early and regular bedtime, and when I awake in the middle of night I listen intently and most times its gone. So I figure stress must be a big part of my mild tinnitus condition. Like others I read about the science, by far not an expert and my experience is antidotal.

 

[MattHooper]

I posted a paper on a proposed scientific study above, as some are linking tinnitus to an active brain disorder related to sleeping, especially deep sleep. Best read it as I'll miss quote it. Another poser has been taking suppliants to help with his ability to sleep that is helping him. I too started to avoid screens late, all caffeine strictly early and regular bedtime, and when I awake in the middle of night I listen intently and most times its gone. So I figure stress must be a big part of my mild tinnitus condition. Like others I read about the science, by far not an expert and my experience is antidotal.

Ok thanks.

Speaking of REM stuff….

I actually tried some of the eye movements that I saw recommended for people trying to fall asleep and it’s been fascinating. It really has an effect.

When you’re lying in bed trying to sleep and your eyes are closed you do a certain type of eye movement under your eyelids, and it’s supposed to help you get to sleep.

I’ve been doing it almost every night for a month or two. Since I have various things affecting my sleep quality, I don’t find that it sends me immediate to sleep.
But wow, does it ever have a reliable and immediate effect on at least getting me partway there. It’s like my mind can be racing, you know when you can’t really shut off your brain to sleep, and if I do these eye movements by the end it’s like a light switches off in my brain and everything seems to go dark like I’m starting to fall asleep and my thoughts stop racing.

I will post it here for anybody interested in trying.

The first thing is it mentions Andrew Huberman. I approach anything Huberman with caution because he’s very popular but also somewhat controversial. He can be too confident in his claims and extrapolations from studies and data.

But this is the kind of thing that’s so easy to try… I figured I may as well….

Here you go:

———————————

Andrew Huberman shares a simple, science-backed trick to fall asleep faster when your mind races or you can't stop noticing your body position:

Close your eyes and do slow, deliberate eye movements to shut down proprioception (body awareness) and signal your brain it's time to transition into sleep.

Try this tonight (takes ~1–2 minutes):

- Slowly move eyes left → right (a few times)

- Then counterclockwise circle → clockwise circle
Look up → down

- Gently attempt to look toward the bridge of your nose (faux cross-eyed)

- Finish with a long exhale to slow heart rate

Why it works: Eye movements coordinate with your vestibular system & cerebellum to mimic the natural forgetting of body position that happens at sleep onset (similar to slow rocking or boat motion calming the brain). It gives your racing mind something active to focus on instead of "just relax."

——————-

I should also add that I do another one that I read about that seems even more effective.
It’s simply with eyelids closed in bed slowly scanning eyes left to right, and I added in counting down very slow slowly from 100.

I’ve done this probably 40 nights in a row and not once have I been able to get past “92” when counting down from 100 before my brain seems to basically shut off and go dark. It’s really wild!

 

[MattHooper]

Regarding trying to find treatment or relief from our tinnitus:

It’s quite a predicament, isn’t it?

This forum tends to attract people with an appreciation for science and the scientific mindset.

But then, what do you do when you have an affliction which is still not fully understood medically, nor is there any scientifically agreed upon treatment?

What do you do when you’re medical condition still resides in the area of medical speculation?

And that’s where we are with tinnitus.

Like many here, I have an allergy to woo-woo, so I guess the best we can do is search for things to try that are at least plausible, for which we can find some level of supportive research, but really for the most part we are on our own to try things out. And in these cases, personal experience can feel pretty important.

For instance, after many years of just trying pure habituation, and especially due to a massive flareup in my hyperacusis in 2018, I finally gave in and tried TRT - tinnitus retraining therapy - which employed both cognitive behavioural therapy as well as sound therapy (noise generators in my ears).

All the research I could do, including talking with some experts very familiar with research in tinnitus, indicated that this was not “B.S.” as a theory or a treatment. But rather, although certain studies had indicated some effectiveness, it had not been thoroughly vetted and demonstrated with the amount of clinical evidence to form medical agreement that it absolutely works. It was just another one of those possibly efficacious, but we don’t know for sure yet therapies.

But sometimes with these type of conditions, you’re in a “ what do I have to lose since I’ve tried so many other things” scenario.

So I gave it a whirl.

It turned out that after the therapy, which took between 18 and 20 months, I was vastly better and able to live a normal life again. With the hyperacusis not affecting my daily life anymore.

Now it could be that without the therapy after those same 18 or 20 months, I would’ve habituated to the same degree anyway.

On the other hand, I had habituated to my hyperacusis flareups many times before over the past decades, but I was still always left with a slightly debilitating threshold for my hyperacusis, which meant that I tended to have to listen to music not very loud as well as as keep volume down for movies in my home theatre centre.

But after this therapy, my hearing was significantly more robust than it had been since the onset of my hyperacusis 25 years ago. I could finally listen to music and movies at relatively loud levels with no discomfort. It felt glorious. Freeing.

When I would visit my audiophile pal he confessed to being shocked at how loud I was turning up the music at his place and listening with no complaints . He was so used to me keeping the volume down, much lower than he would normally listen. But now we were enjoying music at around the same volume levels, which was great.

So in my own personal tinnitus and hyperacusis journey, I’m pretty much left to go on “ whatever has worked for me.”
My endorsement to others of such therapy would be tentative and full of caveats.
But it is something that I would certainly do again if the need arised. (and actually the need has arisen again recently. My problem is that my other health issue keeps me if I’m getting out to the audiology clinic which is part of the treatment).

 

[dped90]

BINGO???????? https://www.genengnews.com/topics/g...approval-for-first-neurosensory-gene-therapy/

 

[dweeeeb2]

FYI: as title says in Canada

 

[amirm]

Just visited an ear surgeon and we talked about Lanier. He said they were trying to sell them on it and he told them until they can show that it works on one of his assistants, he would not believe it. He also said nothing else works other than maybe CBT for severe cases. Told him how it was a waste of money for me and that their research was not placebo controlled. And failed in initial roll out in Europe. Can't believe they got approval in Canada now. Folks will be wasting so much money on it.

 

[EJ3]

Just visited an ear surgeon and we talked about Lanier. He said they were trying to sell them on it and he told them until they can show that it works on one of his assistants, he would not believe it. He also said nothing else works other than maybe CBT for severe cases. Told him how it was a waste of money for me and that their research was not placebo controlled. And failed in initial roll out in Europe. Can't believe they got approval in Canada now. Folks will be wasting so much money on it.

It seems that (from you and from the 6 or 7 others that I have had contact with about it, [unlike some things]) the Lanier technic IS stupider than it looks.
Unless you are the one making money from it. Apparently: Medical Snake Oil (again).

 

[dped90]

Folks will be wasting so much money on it.

Unless you are the one making money from it. Apparently: Medical Snake Oil (again).

Snake oil indeed. Making such trash insurable only delays the progress towards cures for the most common causes of hearing loss.

 

[Martin]

I think that was me...

A Real Cure for Tinnitus

Very interesting. Not available near me yet but I signed up on the waitlist. Martin

www.audiosciencereview.com

You are most welcome.

I signed up back when I posted and still get regular emails letting me know they are working on lining up providers in my area. Fingers crossed. My tinnitus is pretty much a constant 8,800Hz and goes from soft tones in the background to noticeably loud.

Martin

Well, now I feel I must apologize for wasting Amir's time and money on this fruitless pursuit.

I was finally contacted by a provider in my area but when I found out the cost I decided to live with my tinnitus. It's really not too bad. It's fairly noticeable at the moment but that's just because reading through the last several posts in this thread brought it back to mind. Truthfully, most of the time, it's not that noticeable.

Martin

 

[worker24x7]

Mine high pitch bi-lateral non-puslating tinnitus started about 4 months ago.
I felt a sleep on a chair while listening music in hedphones (I would say low volume, but not very very low). for about 2h, then woke up (it was a nap during the day over the winter holidays)
I had that high pitch noise, and from there on, especially in the morning it got loud. During the day slightly less. But still it was almost always on, my focus was disrupted, very hard to concentrate and work.

Now with the warm weather, every time I hear AC or fan sound (now that they are on in house and in car) , tinnitus comes back very fast -- But with less veracity.

In the last 4 months, I also switched and I listen to music very very low volume, to the point where I have to use a headphone amp and large circumference headphone drivers to recognize sound better.

I am using a headphone amp because phones volume control is not precise enough (either 0 or too loud on the next volume up click).

With an amp's volume control (and I have too many amps) I am able to adjust sound to a barely listenable volume where I can still enjoy sound tonality (of course it is not as good as listening at 15% or above levels of volume).
Headphones with large drivers seem to help me to recognize sounds and tonality better, at the very very low volume - so I use JVC HARX 700, Audio Technica A900x and a few others (just to change things up)...

I also prefer very large comfortable pads surrounding my ears, not sitting on top - so I ordered some veloure pads (turns out same pads fit the JVC and the A900x headphones !). The earpads are (if somebody is interested): "
Black Velour Ear Pads Cushion Earpads Cover Earmuff Replacement Pillow Compatible with JVC Harx700 Harx900 HA-RX700 HA-RX900 Headphones Headset
Brand: YDYBZB
"
Also if use headphones sitting on top of ears (rather than over the years), at very low volumes, they disrupt music sound (when moving my head, for example as the pads move a little more). So for now big big headphones, low low volume - work for me.


On top of the above, before I go to sleep (if I remember!) I take magnesium vitamin and drink Kefir (some times). Not sure if the above is of any help or I am just improving health wise -- but my tinnitus is a lot less now. I just feel like I need to calm down my body more, before going to bed. I think sleep has to do something with this, either sleep quality, or sleep positioning, or preparation before sleep, or food in the evening before sleep -- not sure -- I am still reading through the articles I see on this thread, and other places...

I would say listening at very very low volumes causes some sort of excersise to my hearing path-ways. I cannot measure it, but after about 2 months of forcing myself to listen at barely audible levels, I can enjoy music again, and mostly without that high pitch tinnitus.

I felt like the tinnitus I have is in 10khz range (as I tried to match the pitch to the online khz hearing tests). I can hear up to 12.5Khz (used to be able to hear up to 17Khz 13 years ago).
Audiologist says my hearing is above average (but she only tested up to 8khz).

Anyways, just wanted to share about this. I never had tinnitus before -- just started 4 month ago, and I thought it would only go worse from there, but for now I am getting better, fingers crossed.

I know it is not worth much to anybody else, but my tinnitus is doing better, even since the time I wrote the above -- it is still controlled, much lower volume when it starts, and goes away quicker. Still there when I wake up, but not every day. I keep doing my low volume listening 'therapy' (the volume of music has to be always lower than the tinnitus's volume). And two magnesium supplements before I go to bed.

 

[dtaylo1066]

For many, hearing aids will knock down tinnitus, as you ears and brain are working too hard to make up for hearing loss. Good hearing aids can improve tinnitus in 30% or more of people. It certainly helped me some.

Also, check the meds you are on. Some may exacerbate tinnitus.

I will be 70 this year. I would love to have my 25-year-old vision and hearing back. Oh, well.

I will be at the audiologist on Tuesday for a full test. It will be interesting to see how it compares to one and two years ago. I hope not much worse.

 

[amirm]

My audiology test was identical to the one three years ago. So knock on wood, there is no additional degradation.

 

[dtaylo1066]

I normally would have had my annual audiology and hearing aid adjustments (if needed) in June. 3 weeks ago, when fly fishing, I forgot to take my hearing aids out and one got caught in my eyeglass' retention chord and it dropped into the river. $400 for a one-time replacement. Hey, that's a great DAC!

Oh, well. Been without wearing hearing aids for a month. Tinnitus has not gotten worse. New hearing aid will be ready on Tuesday at the test.

I have some insomnia, as do many seniors, so I was prescribed and am trying Trazadone to help fall asleep. It works OK and, on the positive side, I have noticed less tinnitus after using the drug. Hmm.

When it is late and still, say at midnight, and I lie down in bed, the ears can be ringing pretty loudly. Most of the time you can tune it out, but not then. Drinking alcohol will always crank up my tinnitus, and my ears will be buzzing big time when I lie down for sleep.

I can play music via Bluetooth in my hearing aids. It is not stellar, but it works and is good for at the gym when I work out and listen to music on Tidal on my iPhone. It would be interesting for you to test a high-end hearing aid for its music listening capabilities. I think the results would suck, but they would be fun to see. They adjust my hearing aids with EQ via DSP. It is kind of cool. I think the hearing aids only go up to 8 kHz.

 

[amirm]

Funny story. Was talking to the Audiologist before taking my test. He told me he has tinnitus as well. I told him I hear mine when someone talks about it. Otherwise I don't. He said lucky you. Every day I hear a patient talking about it so mine goes on non-stop!