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Lenire Tinnitus Treatment

Just realized in a few weeks it will be a year since I screwed up my ears, and a year since I have been able to listen to music, or watch a movie. It’s headed to “are my music listening day over” territory. :(

Very sorry to hear this. I didn’t realize it was that bad. I hope it improves.

Building on what @AdamG writes above, I attended a small indoor event in 2017 that was way too loud and had a serious increase in tinnitus afterwards. It took weeks for the most obvious effects to die down, and for years afterwards the effects lingered. Even today I still have more tinnitus than I had previously, though thankfully it is quite minor most of the time.

I too use a fan in the bedroom at night. It’s on the lowest setting and I can sleep without it, but it does nevertheless make it a little easier to fall asleep quickly.

My understanding is that tinnitus is a physical and neurological issue, and the latter makes it possible to partially self-treat by practicing meditation or breathing exercises, getting enough sleep, and so on. I’ve also found that it gets worse when my neck or back is out of alignment or my neck muscles are sore. So chiropractic or massage or PT can also be helpful.

Best of luck, Matt.
 
Mine is definitely more noticeable at night and in the evening....I do use a nighttime sound program, ReSound (on the Apple store, FREE) that has nice frequency adjustments for "soundscapes" one can create - mine is mixed to a higher frequency hiss than regular white noise, and seems to make my brain relax for sleep.

I am glad that when playing music through the day at low to mid levels, I barely notice it, so enjoyment of music and other entertainment has not stopped. The only pattern in mine is that I do notice it more as the day progresses, and of course, in quiet rooms.

I also bought a fairly inexpensive OTC hearing aid, the Audien Ion, and use the right ear piece occasionally in the day or evening. If I'm really noticing the tinnitus tone, that also seems to calm it down a bit, makes my brain focus on the slight hiss from the loudness aid rather than the tinnitus.

Hope your condition improves, Matt. It would be awful to not be able to continue to enjoy music in particular, and life sounds in general...
 
There are a few papers and articles about Lenire treatment, results are great but I wonder if anyone here had some first hand experience in relief by using it?
I currently have a flare up in my tinnitus so I started to look for treatments, this seems promising other than the price
Used it religiously for 6 months, didn't work, have moved on.
 
Mine can be pretty bad at times, but it doesn’t affect my sleep. If anything I sleep better now than throughout some other periods in my life when I had no tinnitus. Hope it at least doesn’t get worse. I’m coping with it, about the only loss of function is being able to enjoy the music to the extent as I used to, but some days are better than others and listening in headphones seem to work better. I can’t link mine to any particular event with any certainty, I suspect it’s related to stress.
 
I’m really sorry to read about your story Matt. It sounds horrible and I can relate to some degree. Personally I live with pretty serious tinnitus. What I started doing decades ago not fully realizing why I was doing it. I began not being able to sleep at home because it was too quiet and I was accustomed to living abroad Ship. The sound of a Ship at night was never quiet and the hum and thump of main feed pumps and what not was the music I had become used to listening to as my sleeping music. Aboard Ship as an Engineer. When things go silent, we are in trouble and it’s a blaring (yet silent) alarm in my brain to jump up and make way to Engineering Main Control to manage the propulsion plant casualty. Going dark and loosing headway and rudder control is ALWAYS cause for alarm and immediate action. Long story short here. Silence began to cause me unacknowledged stress. But slowly it also became apparent to me that I had this crazy loud buzzing in my hard that would keep me awake. Fast forward to now. This might not work for you. But if you haven’t tried it. Maybe will offer you some relief.

I run a small floor fan in my bedroom at night. Can’t sleep without it. On the low setting it offers just enough background noise to mask out my tinnitus and let me sleep. I am sharing this with you in the hope that you might find this helpful and maybe discover something similar that might offer you some relief. Personally my tinnitus kicks off like mad if I don’t sleep well. Matt I feel your pain and share many of your symptoms. Dishes and pans in the kitchen can be so loud it hurts. Even my own voice can trigger an episode. Good luck. I know of no medical solutions personally. Just coping mechanisms and methods. I also use IEMs and low volume music on bad nights Sounds strange but for me the only thing that works is applying some form of sound to distract my brain from the hiss/hum/ringing that is ever present in my head.
I was on board ships 24/7 (40 hour work week, so if we were in port on a weekend...) from 2001-2018. I typically resided near the stern. Our ships were 950 ft. with 107 ft. beam & twin 36,000 HP turbines.
A bit quieter than some. But when everything stopped and we were drifting for 4 days (many miles from any shipping lanes, thank God, in the Western Pacific), the silence was deafening! And anxiety was very high! Generators are a great thing but very, very loud. Especially when there is only one additional bulkhead between one & your sleeping quarters.
Tinnitus: yes (and substantial but fortunately not debilitating.
Silence is debilitating! (As I associate it with no power on a ship for 4 days) My home has central heat & air. The fan is always in the ON position.
I also have strategically placed floor fans. For me, that & ceiling fans are a wonderful help.
But my wife hates the always circulating air.
For this reason, we go to bed together & when I finally fall asleep, then she goes to what would in a normal home be a guest bedroom but it is converted to her bedroom and she has the half the vents 100% blocked off & no ceiling fan or any other type of fan.
Our home life is totally different than it used to be because of these auditory (and related psychological) issues.
Louder sounds jolt me and there being no sound (with only my tinnitus as noise), totally freaks me out.
I am glad that it is not worse for me & pray for those that I know (& don't know) that have it worse.
 
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Ten years since a stupid amateur concert by a really bad band destroyed my right ear. And I only stayed the first song, knowing that it was annihilating my hearing. Constant loud ringing since then. Not a second of relief. I stopped making music and I didn't listen to any music for at least five years. How many times I have regretted not getting out in the ten first seconds...
 
Just realized in a few weeks it will be a year since I screwed up my ears, and a year since I have been able to listen to music, or watch a movie. It’s headed to “are my music listening day over” territory. :(
Sorry to hear that. Was there an incident that causes hearing damage?
 
Sorry to hear that. Was there an incident that causes hearing damage?

I’ve had tinnitus since the 90s - I played in a very loud band. I also developed hyperacusis around 2001.

But the incident last year had to do with me listening to music too loud and too long.
That is for me, since I have a lower than normal threshold before loud sounds starts to ignite my Tinnitus.

I had always been careful about volume levels when listening to music at home or at audiophile friend’s places.

Sometime in 2018 I made the mistake of visiting a beach area unaware that moments later low-flying squadrons of fighter jets would be striving overhead on their way to an airshow over the lake. I had no earplugs with me, and the sound was so loud it vibrated my entire body and completely screwed up my ears. Examined by an audiologist, the diagnosis was the alarmingly phrased “ catastrophic hyperacusis.” Even the softest of sounds hurt my ears. At times I could barely even talk.

This finally forced me to do something about my hyperacusis. I’d known of a possible treatment based on tinnitus retraining therapy, which used small hearing aid like devices in the ear to softly pump in carefully sculpted white noise which overtime was supposed to help the brain recalibrate and get used to noise. (The devices reduce dynamic range to a degree so sounds hard as startling, and over many months, the nature of the sound is changed and the sound is dialled higher and higher).

I underwent the therapy and the result was, while not a total cure, that my regular hearing came back, and was more robust then it had been in 20 years. It was frankly glorious.
When I visit my audio buddy friends place and he’d hand me the remote because he always knew I wanted to carefully control the volume. After the treatment, he couldn’t believe how loud I could comfortably listen. A real change from all the years he’d known me.

Anyway, things were great for a number of years, and then I got too greedy last year and started playing louder and louder, for really long periods of time. My tinnitus would flare a bit but then quickly go back down so I didn’t think much of it.

And then one night I had been listening for about three hours loud (for me) and I noticed my ears ringing, but I thought “ oh well, it will go away well, just deal with it after” and so I kept listening loud for another couple hours.
When I turn off the music I couldn’t believe how loud my ears were ringing. It was pretty shocking. And my usual strategies did not get it to go away. I couldn’t sleep. It would keep waking me up. And that freaked me out.

Essentially, that was a start of where I am now a year later.

By the summer I had at least habituated so that it wasn’t bothering me much during the day and I could sleep through the night.
But then, as I described earlier in the thread, I was reaching for a pan in the cupboards over our fridge when parts holding the pans broke and all the big metal pans started falling and crashing around my ears…. Which sent me right back to square one for many months.

At this point, I have at least habituated to sleeping through the night and to the tinnitus rarely bothering me during the day. But not yet up to listening to music or watching movies.

Anyway, my heart goes out to others in this thread who have really struggled with this condition. There sure are a lot of us.
 
I’ve had tinnitus since the 90s - I played in a very loud band. I also developed hyperacusis around 2001.

But the incident last year had to do with me listening to music too loud and too long.
That is for me, since I have a lower than normal threshold before loud sounds starts to ignite my Tinnitus.

I had always been careful about volume levels when listening to music at home or at audiophile friend’s places.

Sometime in 2018 I made the mistake of visiting a beach area unaware that moments later low-flying squadrons of fighter jets would be striving overhead on their way to an airshow over the lake. I had no earplugs with me, and the sound was so loud it vibrated my entire body and completely screwed up my ears. Examined by an audiologist, the diagnosis was the alarmingly phrased “ catastrophic hyperacusis.” Even the softest of sounds hurt my ears. At times I could barely even talk.

This finally forced me to do something about my hyperacusis. I’d known of a possible treatment based on tinnitus retraining therapy, which used small hearing aid like devices in the ear to softly pump in carefully sculpted white noise which overtime was supposed to help the brain recalibrate and get used to noise. (The devices reduce dynamic range to a degree so sounds hard as startling, and over many months, the nature of the sound is changed and the sound is dialled higher and higher).

I underwent the therapy and the result was, while not a total cure, that my regular hearing came back, and was more robust then it had been in 20 years. It was frankly glorious.
When I visit my audio buddy friends place and he’d hand me the remote because he always knew I wanted to carefully control the volume. After the treatment, he couldn’t believe how loud I could comfortably listen. A real change from all the years he’d known me.

Anyway, things were great for a number of years, and then I got too greedy last year and started playing louder and louder, for really long periods of time. My tinnitus would flare a bit but then quickly go back down so I didn’t think much of it.

And then one night I had been listening for about three hours loud (for me) and I noticed my ears ringing, but I thought “ oh well, it will go away well, just deal with it after” and so I kept listening loud for another couple hours.
When I turn off the music I couldn’t believe how loud my ears were ringing. It was pretty shocking. And my usual strategies did not get it to go away. I couldn’t sleep. It would keep waking me up. And that freaked me out.

Essentially, that was a start of where I am now a year later.

By the summer I had at least habituated so that it wasn’t bothering me much during the day and I could sleep through the night.
But then, as I described earlier in the thread, I was reaching for a pan in the cupboards over our fridge when parts holding the pans broke and all the big metal pans started falling and crashing around my ears…. Which sent me right back to square one for many months.

At this point, I have at least habituated to sleeping through the night and to the tinnitus rarely bothering me during the day. But not yet up to listening to music or watching movies.

Anyway, my heart goes out to others in this thread who have really struggled with this condition. There sure are a lot of us.
Thanks for sharing. Hope it settles again for you, and soon
 
I found a good review video about Lenire treatment, the most interesting thing is how they came up with their numbers, which explains why there's such a big gap between claimed and real world results (spoiler: they hand picked their subjects and claimed that a single number drop in THI score as a success, but to consider meaningful change using this scale it should be 7 points or more)

 
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Thanks to whoever posted about this new treatment for Tinnitus, I signed up on their waiting list a few months ago. I thought they wouldn't call me as they have no providers in Washington state. To my surprise a couple of weeks ago an Audiologist from Alaska (!) contacted me saying he is also licensed in Washington state (prior to that, I got a questionnaire from Lenire). Before they would do anything for me, they required an audiologist report/exam from a local lab. Had that scheduled for earlier this afternoon. I asked the Dr. that was running my test about this treatment. She said the research looks good and that every audiology lab in US is clamoring to sign up to provide it! She said the company is very picky on who they bring onboard. She also said I was lucky to have gotten through as they have a ton of patients that are still waiting. She said a number of people had actually flown to Alaska to get the treatment!

My tinnitus is pretty much under control and I only hear it when thinking about it, as in right now! :) And sometimes when there are loud sounds or my allergies get bad. Still would be nice to have it treated. Mine is the type that is the frequencies I don't hear anymore, i.e. very high pitch sound.

I thought I keep you all posted on this in case you are also interested. If you have tinnitus, I suggest getting on their waiting list just in case the outcome is positive for me and you want to try it as well.
Awesome news. I have had tinnitus my whole life due to my birth and tubes in my ears at a very young age maybe 5 years old. Some days are worst then others. I have noticed when I get stressed it really is pronounced in my ears. I do have a times now where it gets so loud my ears block out all noises and I can’t hear anything (like going deaf). I do were head phones but, not like I use to. I wear ear protection every time am by a machine outside doing outside work or when it’s needed. I protect my hearing now that am getting older and up in years. You only have 1 set of ears and 1 set of ear drums. Again congratulations Amirm. I hope this helps and kills that ringing in your ears. God Bless. Jeff
 
I hope this helps and kills that ringing in your ears. God Bless. Jeff
Thank you Jeff. Alas, the treatment was ineffective. Fortunately I am able to cope very well with my tinnitus anyway and most of the time I don't even know it is there.
 
To be honest I had to get on meds because it was so bad I was aggravated and angry a lot of the timeif this is normal? Now am able to cope with it a lot better as well.Anger is pretty much gone aggregation is down and not really a problem. Thanks Amirm.
 
To be honest I had to get on meds because it was so bad I was aggravated and angry a lot of the timeif this is normal?
It is very normal. To wit, when I first realized I had it, my doctor told me some people have it so bad that they needed therapy, couldn't get sleep, etc. It can be really depilating.

I know I was aggravated for a few days as well.
 
It is very normal. To wit, when I first realized I had it, my doctor told me some people have it so bad that they needed therapy, couldn't get sleep, etc. It can be really depilating.

I know I was aggravated for a few days as well.
Some times it’s a 2,500 khzor a 5,000 khz or a or an 8,000 khz. I only know this because a family member asked me what it sounds like and I said like these. They couldn’t take it. lol. I also have grown to live with it. They have so much advancement treatments and medicine theses days. Too bad they don’t have a fix for this Tinnitus. Thanks for sharing. Jeff
 
It's been over a year for me, it's definitely annoying...I am just grateful that thus far, my sleep does not seem to be too impacted. Today I got a great deal on some of the Apple Air Pod Pro 2 earbuds, looking forward to seeing how they work to "patch" my weaker hearing in my right ear.

Whomever comes up with a treatment that really works...is going to make a lot of $$...
 
It's been over a year for me, it's definitely annoying...I am just grateful that thus far, my sleep does not seem to be too impacted. Today I got a great deal on some of the Apple Air Pod Pro 2 earbuds, looking forward to seeing how they work to "patch" my weaker hearing in my right ear.

Whomever comes up with a treatment that really works...is going to make a lot of $$...
I agree. who ever comes up with this treatment will be very wealthy. I hope the Air pod pro # 2, helps subside some of the ringing in your ears. My doctor said earring aids will help reduce the ringing but, not eliminate it altogether. I don’t have $8,000 for new hearing aids and my newer insurance will not help me out even though it’s a birth defect. So if the Air pod pro #2 work for you I wouldn’t mind trying them out. Better than nothing. Jeff
 
I've had moderate tinnitus for years, coupled with slowly deteriorating hearing. I'll be seeing an audiologist soon as aids are likely to be part of my life. I'm fine with that.

Reading this thread and other info suggests to me that Lenire is probably not a solution for me. I also have TMJ disorder (TMD) on the right side of my jaw. Early in this thread someone mentioned wearing a night guard as TMD might be causing tinnitus.

Does anyone have experience using a night guard (mouth guard) for either disorder? Any relief for either?
 
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I agree. who ever comes up with this treatment will be very wealthy. I hope the Air pod pro # 2, helps subside some of the ringing in your ears. My doctor said earring aids will help reduce the ringing but, not eliminate it altogether. I don’t have $8,000 for new hearing aids and my newer insurance will not help me out even though it’s a birth defect. So if the Air pod pro #2 work for you I wouldn’t mind trying them out. Better than nothing. Jeff
I have found that often in the evening, if I use the cheap hearing aids I've had (really volume boosters - Audien Ion - they do not adjust by frequency, just boost volume) the slight hiss from the mic pickup diminishes my awareness of the tinnitus tone. It provides a bit of relief - at least for me - if I am too aware of the tone. So that's one way to go or try out - a number of the Over the Counter aids like Audien have a pretty generous return window.

I'll report back on what I experience with the Air Pods, if anything noteworthy. For a number of people who can't afford the more customized hearing aids, seem like it could be quite helpful. (I could afford to get an expensive one for my right ear - but I'm just cheap!)
 
I have found that often in the evening, if I use the cheap hearing aids I've had (really volume boosters - Audien Ion - they do not adjust by frequency, just boost volume) the slight hiss from the mic pickup diminishes my awareness of the tinnitus tone. It provides a bit of relief - at least for me - if I am too aware of the tone. So that's one way to go or try out - a number of the Over the Counter aids like Audien have a pretty generous return window.

I'll report back on what I experience with the Air Pods, if anything noteworthy. For a number of people who can't afford the more customized hearing aids, seem like it could be quite helpful. (I could afford to get an expensive one for my right ear - but I'm just cheap!)
Having only mild tinnitus and hearing aids for 8 months: my experience is that normal hearing aids with open domes reduce my tinnitus during the day. While having a more closed dome increases my tinnitus.
I did not try it for long but I would expect the very occluding airports Pros would have the same effect as closed domes.
 
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